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After a scary start, 1-year-old Willow is living a delightfully ordinary life

Soon after she was born, red dots appeared all over Willow Flaherty’s body. The dots were infantile hemangiomas—and doctors suspected they were a warning sign for another life-threatening condition.
Thanks to quick action by pediatric dermatologist Sheilagh Maguiness, MD (left), 1-year-old Willow Flaherty avoided severe liver complications of her many infantile hemangiomas. (Photo by Scott Streble)
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Not even the sniffles can slow down little Willow Flaherty. She and her identical twin sister, Hazel, are babbling happily and showing off their new crawling skills. It’s a delightfully ordinary scene for the two, who got off to a rocky start—especially Willow.

The Flaherty twins were born six weeks premature and spent their first two weeks in the neonatal intensive care unit at University of Minnesota Masonic Children’s Hospital. After they came home, their parents, Courtney and Jim Flaherty, began noticing little spots on Willow’s hands and belly.

These small spots were infantile hemangiomas: small vascular tumors that can be harmless, but when more than five appear on a newborn’s skin, it’s a clue that there may be hemangiomas on the liver as well.

Untreated, liver hemangiomas can lead to serious complications—thyroid dysfunction, heart failure, or even death. University of Minnesota Health Pediatric Dermatologist Sheilagh Maguiness, MD, an expert on vascular lesions, was aware of the potential consequences and ordered an abdominal ultrasound.  Sure enough, the care team found “innumerable” tumors on Willow’s liver.

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Maguiness recommended starting Willow on propranolol. A decade ago, health care professionals accidentally discovered that the medication can dramatically reduce or eliminate hemangiomas. At the time, the Flahertys didn’t fully grasp what a dangerous bullet they were dodging.

“Thank goodness [Maguiness] did a really good job of downplaying how bad it could have been,” Courtney Flaherty says. “She helped keep me calm.”

The medication, a liquid Willow took three times daily, yielded almost immediate results with few side effects. Within two months, Willow’s liver hemangiomas were almost gone.

In March, the twins’ parents celebrated more than the girls’ first birthday: Willow also took her last dose of propranolol.

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Maguiness, an assistant professor of dermatology at the University of Minnesota who is studying infantile hemangiomas and other birthmarks, emphasizes the importance of raising awareness among pediatricians about infantile hemangiomas, especially when they are large, on the head and neck, or numerous. She calls propanolol’s effectiveness in treating all types of hemangiomas “game-changing.”

“Before propranolol, mortality was as high as 28 percent with diffuse liver hemangiomas,” says Maguiness, who codirects the interdisciplinary University of Minnesota Health Vascular Lesions Clinic. “Now, with regular screening and appropriate therapy, there are no deaths. It’s a story with a very happy ending.”

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