Call a CF Patient Care Coordinator at 612-625-5995 or toll free at 1-800-688-5252, ext. 55995.
If this is your first visit to our Center, please bring a list of your medications and how they are prescribed OR bring the medications.
Request a copy of your medical records be sent to us prior to your visit. Medical records should be sent to:
The Minnesota Cystic Fibrosis Center 420 Delaware Street SE MMC 742 Minneapolis, MN 55455 Fax: 612-624-0696
Preparing for a Clinic Visit
For routine visits, please bring a list of questions and a list of refill medication needs.
Please bring your vest to the appointment in order to have the sizing checked during your annual study visit.
As a return patient, you will be scheduled for a 40-minute appointment and as a new patient, you will be scheduled for an 80-minute appointment. At times due to extenuating circumstances, your visit may be longer or delayed. If the patient is a child, it is a good idea to bring books, a toy or snacks so you can focus on the conversation or questions that you have for your child's provider.
What to Expect at a Clinic Visit
Any child over the age of six is expected to complete pulmonary function testing prior to the doctor's visit.
The rooming staff will take your child's blood pressure, temperature, respiratory rate, and pulse and review medications. A culture (sputum or throat) will be done at each visit. If your child is less than two years old, a suctioned culture may be necessary.
A CF interval history sheet will be given to you to fill out prior to seeing your provider. It will be reviewed by your provider during your visit.
Patients/parents will also have a brief interview with the CF nurse to review current health problems, medication use and goals.
If your child is old enough, ask him/her what questions they would like to ask. Put your child in charge whenever possible. Teach your child to speak their mind and to take an active role in his or her own care.
In addition to your primary CF physician, as we are a teaching facility, you may be seen by a physician-in-training such as a medical student, intern, resident or fellow.
At least annually and when indicated at any clinic visit, each family will have the chance to speak with a dietitian, a social worker, respiratory therapist or geneticist.
Based on your child's evaluation and your provider’s recommendation, your child may be required to have additional lab work or x-rays.
If at any time during your visit, you are feeling overwhelmed, please let your provider or any team member know immediately.
We will give you an after visit summary with key information discussed at your visit. You may also request copies of a growth chart and pulmonary function testing.
Please be prepared to schedule your next visit at checkout.
What to Expect After a Clinic Visit
A results letter will be mailed to you when test results, such as cultures, are completed approximately one-to-three weeks after your clinic visit. If the provider wants you to change a medication or wants to send a message, you will be notified of the change via phone. If there is no change, the letter will say "no change from clinic visit."
If at any time you have questions related to your visit or your child is ill, please call our triage nurses at 612-625-5995. They are available to take your call Monday through Friday from 8 a.m. to 4:30 p.m.
If your child has an urgent medical need after office hours, please call 612-273-3000 and ask to speak to the pediatric pulmonologist on call.