When The Minnesota Department of Health added cystic fibrosis to the newborn screening program in 2006, we were proud to be involved. There is strong evidence that children benefit significantly from early diagnosis and treatment.
The Minnesota Cystic Fibrosis Center, building on its long-standing tradition of excellence in care provides comprehensive care from diagnosis on, working preventatively to keep children healthy, ease symptoms, and reduce complications for infants diagnosed with this condition. Most of the infants who screen positive on newborn screening do not have cystic fibrosis but are likely to be carriers of CF. Because of that, our program includes same-day genetic counseling services for families undergoing sweat testing due to positive newborn screening. This helps families to better understand what it means for their child to be a carrier and how this information affects other family members.
Hearing the news that your child has a positive cystic fibrosis newborn screening result can be difficult and you may have questions and concerns. Please see these commonly asked questions and answers.
Other treatments involved in the care of cystic fibrosis include: