For Hematologist/Oncologist Karim Sadak, MD, MPH, MSE, who specializes in the care of childhood cancer survivors, helping survivors progress after their treatments and live healthy lives is a tall order — but it’s a critical one.
Sadak is the Director of the Childhood Cancer Survivor Program (CCSP) for the University of Minnesota Masonic Children’s Hospital. To ensure childhood cancer survivors have the resources and information they need to live healthy adult lives, Sadak shares about five important tips childhood cancer survivors should know about their post-cancer health.
“It’s not just those kids who got brain radiation that may have learning deficits,” Sadak said. Parents should be aware of the risks. If there are issues with learning, specialists at University of Minnesota Masonic Children’s Hospital “absolutely have the resources to help survivors in the school system,” and can even speak with teachers and administrators.
“Parents and survivors should know that we are here for them, not just while they’re still children, but also as they grow into and through adulthood,” Sadak said. “Survivor-focused care doesn’t end when the child turns 21. We want and can and will follow them for a lifetime to make sure all their survivor-focused needs are met. And we’ll make sure it’s done in an age-appropriate way.”
Childhood cancer survivors who reach age 21 have a seamless transition to adult care-setting still within the cCSP. The program continues to partner with the survivors’ primary care physician to ensure that the survivor is getting the care they need.
“When survivors—and even parents—start wanting to avoid coming back for their yearly visits, that is sometimes a real red flag for some underlying anxiety and/or fears about what’s going to take place or be found during their visit,” he said. “Or they may feel anxiety and fears when talking about their childhood cancer history. It’s natural to feel some level of anxiety, but when it gets in the way of the survivor or their family getting the medical care they need, that becomes a problem.”
“A big part of the yearly visit to the cCSP is checking for growth issues: Our survivors get weighed and have their heights measured. We calculate their body mass index and make sure we’re keeping track of their growth and development. So, if there ever is an issue, we can catch it early and get them to the right person.”
Survivors should know that University of Minnesota Masonic Children’s Hospital has hormone specialists available for appointments that are specialists in childhood cancer survivors.
“Some of the treatments for hormonal growth issues can only be done at a certain time within a certain age range. So, if you miss that window of opportunity, the treatments are not as effective and won’t be as beneficial,” Sadak said.
“I’m talking about things as simple as maintaining a well-balanced, low-fat diet and keeping routine exercise regimen and using sunscreen for skin cancer protection. All of these routine health maintenance-type activities can really make a difference in reducing or lowering the risk for several late effects and will keep our survivors as healthy as possible overall.”